Update: February 2005 – April 2006
April 1, 2006
Madumekala was started on hormone replacement therapy (hydrocortisone and thyroxine) at that time, but the parents could not afford the treatment with growth hormone ($450/month).
Real Medicine decided to support Madumekala’s treatment so that she would have a chance to reach an adult height and live a normal life. We were able to provide treatment for her starting in March 2005 for the entire upcoming year with the help of Care Sri Lanka (www.caresrilanka.com). Thank you!
Prof. Sujeewa Amaresena, the Head of the Department of Pediatrics of the University of Ruhuna in Galle, generously offered to oversee her treatment.
By June 2005, after two months of treatment with growth hormone, Madumekala had already responded very well. She had grown more than an inch and her body and face had started to change. Her mother is driving with her by bus to Galle (4-hour-drive) once a month to see Dr. Sujeewa Amarasena and to pick up the medication. Right now, she is treated with growth hormone, thyroxine and hydrocortisone.
We saw Madumekala again in March 2006, by then she had grown a total of 9cm (3.54 inches) under the treatment. And she is becoming more and more of a happy little girl.
To continue the treatment, we need about $480/month for the next 4 to 5 years to make it possible for Madumekala to reach an acceptable height. The goal is to treat Madumekala with growth hormone until she reaches puberty.