Sri Lanka: Long Term Medical Support and Growth Hormone Treatment for Children

Updates on 4 Children Receiving Support: Q1 2019

May 10, 2019

Stephney Minerva Fernando

Sri Lanka Initiative Reports

Madumekala receives the food parcel

Madumekala Ubeywarna

JANUARY 2019

Madumekala is a 24-year-old young woman. She did come to the meeting with her mother. She did not receive 5 vials of growth hormone (GH) for the month of January.
In 2018, Dr. Muditha Weerakkody, a consultant endocrinologist, prescribed Progynova as Madumekala’s new medication for menstruation instead of Climen. Madumekala has been on this new medication for 15 months with no complaints. The dosage was increased from 1 tablet to 1.5 tablets every night on October 25, 2018. This medication is not provided at the Karapitiya clinic and must be purchased from an outside pharmacy. Her weight and height have increased.
Madumekala’s bone age is 13.5 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He had referred Madumekala to Professor Sujeewa for further observation, as the medical consultants believe she should stop the growth hormone therapy.
Madumekala now has to visit the Karapitiya Teaching Hospital in Galle once a month, but she was not able to go in January. She will visit the clinic at Karapitiya on February 26.
Madumekala’s sodium valproate dosage has stopped, but other medications continue.
Madumekala’s food parcel was changed slightly in 2018; instead of red rice, she is given more milk powder, salmon, and cheese. This change makes the food parcel easier for her to take to Galle.

FEBRUARY 2019

Madumekala is a 24-year-old young woman. She did not come to the meeting with her mother. She did not receive 5 vials of growth hormone (GH) for the month of February.
Dr. Muditha Weerakkody, a consultant endocrinologist, prescribed Progynova as Madumekala’s new medication for menstruation instead of Climen. Madumekala has been on this new medication for 16 months with no complaints. The dosage is 1.5 tablets every day. This medication is not provided at the Karapitiya clinic and must be purchased from an outside pharmacy.
Madumekala’s bone age is 13.5 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He had referred Madumekala to Professor Sujeewa for further observation, as the medical consultants believe she should stop the growth hormone therapy.
Madumekala now has to visit the Karapitiya Teaching Hospital in Galle once a month. She visited on February 26.
Madumekala’s sodium valproate dosage has stopped, but other medications continue.
Madumekala’s food parcel was changed slightly in 2018; instead of red rice, she is given more milk powder, salmon, and cheese. This change makes the food parcel easier for her to take to Galle.

MARCH 2019

Madumekala is a 25-year-old young woman. She did not come to the meeting with her mother. She did not receive 5 vials of growth hormone (GH) for the month of March.
Dr. Muditha Weerakkody, a consultant endocrinologist, prescribed Progynova as Madumekala’s new medication for menstruation instead of Climen. Madumekala has been on this new medication for 17 months with no complaints. The dosage is 1.5 tablets every day. This medication is not provided at the Karapitiya clinic and must be purchased from an outside pharmacy.
Madumekala’s bone age is 13.5 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He had referred Madumekala to Professor Sujeewa for further observation, as the medical consultants believe she should stop the growth hormone therapy.
Madumekala now has to visit the Karapitiya Teaching Hospital in Galle once a month, and she went to the clinic at Karapitiya on March 28. She underwent 2 tests at the Karapitiya Teaching Hospital clinic:
- Thyroxin (THS)
- Carrisol
Madumekala’s sodium valproate dosage has stopped, but other medications continue.
Madumekala’s food parcel was changed slightly in 2018; instead of red rice, she is given more milk powder, salmon, and cheese. This change makes the food parcel easier for her to take to Galle.

Madura’s mother with the food parcel

Madura Madushanka

JANUARY 2019

Madura is a 22-year-old young man. He did not receive 4 vials of growth hormone (GH) for the month of January.
He had attended school and private classes and completed the Advanced Level Exam twice. At the moment, he is taking an advanced computer course and looking forward to finding a suitable job.
As Professor Sujeewa requested, Madura is now attending the clinic for his kidneys and taking medication as well.
A medical consultant at Karapitiya Teaching Hospital had requested a bone age study of both hands, as hypoparathyroidism can cause bone disease. After observing the test results, the medical consultants, under the instruction of Professor Sujeewa, Senior Pediatrician at Karapitiya Teaching Hospital, decided to stop the growth hormone therapy.
Madura had selected the Vocational Training Centre in Galle to take a computer hardware course, which he completed successfully. This has opened the opportunity for him to take a Diploma in Hardware course, which will start on February 7, 2019.
His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.

FEBRUARY 2019

Madura is a 22-year-old young man. He did not receive 4 vials of growth hormone (GH) for the month of February.
He had attended school and private classes and completed the Advanced Level Exam twice. At the moment, he is taking an advanced computer course and looking forward to finding a suitable job.
As Professor Sujeewa requested, Madura is now attending the clinic for his kidneys and taking medication as well.
A medical consultant at Karapitiya Teaching Hospital had requested a bone age study of both hands, as hypoparathyroidism can cause bone disease. After observing the test results, the medical consultants, under the instruction of Professor Sujeewa, Senior Pediatrician at Karapitiya Teaching Hospital, decided to stop the growth hormone therapy.
Madura had selected the Vocational Training Centre in Galle to take a computer hardware course, which he completed successfully. This opened the opportunity for him to take a Diploma in Hardware course, which started on February 7, 2019.
His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.

MARCH 2019

Madura is a 23-year-old young man. He did not receive 4 vials of growth hormone (GH) for the month of March.
He had attended school and private classes and completed the Advanced Level Exam twice. At the moment, he is taking an advanced computer course and looking forward to finding a suitable job.
As Professor Sujeewa requested, Madura is now attending the clinic for his kidneys and taking medication as well.
A medical consultant at Karapitiya Teaching Hospital had requested a bone age study of both hands, as hypoparathyroidism can cause bone disease. After observing the test results, the medical consultants, under the instruction of Professor Sujeewa, Senior Pediatrician at Karapitiya Teaching Hospital, decided to stop the growth hormone therapy.
Madura had selected the Vocational Training Centre in Galle to take a computer hardware course, which he completed successfully. This opened the opportunity for him to take a Diploma in Hardware course, which started on February 7, 2019.
His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.

Gayan with his food parcel

Gayan Madushanka

JANUARY 2019

Gayan is 23 years old. For the month of January, Gayan did not receive any vials of growth hormone (GH). After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him three years before, on February 2, 2016.
Gayan visited the clinic at Karapitiya on January 10 to get the Testoviron injection. His Testoviron injection started at 50 ml in April 2013; it increased to 125 ml in August 2016; it again increased to 250 ml in October 2017.
Gayan was treated by Dr. Muditha Weerakkody, a consultant endocrinologist, who increased Gayan’s injection as well as decreased his thyroxine dosage to 125 mg per day. Other medication is continuing as well.
Gayan has to visit the clinic at Karapitiya after 3 months, but he has to receive the Testoviron injection every month.
Gayan will undergo another MRI scan after 6 months.
Gayan has been taking his usual medication with no complaints, including 150 mg of thyroxine daily as well as 1 hydrocortisone tablet in the morning and half a tablet in the afternoon and at night. The Karapitiya clinic in Galle freely distributes these medications to Gayan.

FEBRUARY 2019

Gayan is 23 years old. For the month of February, Gayan did not receive any vials of growth hormone (GH). After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him three years before, on February 2, 2016.
Gayan visited the clinic at Karapitiya on February 7 to get the Testoviron injection. His Testoviron injection started at 50 ml in April 2013; it increased to 125 ml in August 2016; it again increased to 250 ml in October 2017.
Gayan was treated by Dr. Muditha Weerakkody, a consultant endocrinologist, who increased Gayan’s injection as well as decreased his thyroxine dosage to 125 mg per day. Other medication is continuing as well.
Gayan has to visit the clinic at Karapitiya after 3 months, but he has to receive the Testoviron injection every month.
Gayan will undergo another MRI scan after 5 months.
Gayan has been taking his usual medication with no complaints, including 150 mg of thyroxine daily as well as 1 hydrocortisone tablet in the morning and half a tablet in the afternoon and at night. The Karapitiya clinic in Galle freely distributes these medications to Gayan.

MARCH 2019

Gayan is 23 years old. For the month of March, Gayan did not receive any vials of growth hormone (GH). After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him three years before, on February 2, 2016.
Gayan visited the clinic at Karapitiya on March 7 to get the Testoviron injection. His Testoviron injection started at 50 ml in April 2013; it increased to 125 ml in August 2016; it again increased to 250 ml in October 2017.
Gayan was treated by Dr. Muditha Weerakkody, a consultant endocrinologist, who increased Gayan’s injection as well as decreased his thyroxine dosage to 125 mg per day. Other medication is continuing as well.
Gayan has to visit the clinic at Karapitiya after 3 months, but he has to receive the Testoviron injection every month.
Gayan will undergo another MRI scan after 4 months.
Gayan has been taking his usual medication with no complaints, including 150 mg of thyroxine daily as well as 1 hydrocortisone tablet in the morning and half a tablet in the afternoon and at night. The Karapitiya clinic in Galle freely distributes these medications to Gayan.

Tharindu’s wife with the food parcel

Tharindu Hasanga

JANUARY 2019

Tharindu met with the medical consultant at the Karapitiya Teaching Hospital in Galle in January with his new blood profile. His cholesterol level was low, and no change in the dosage of his medication was needed. Tharindu will continue to visit the clinic every 6 months with a new blood profile.
Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has decreased by several kilograms. The medical consultant had given Tharindu a diet system, and he must eat what is listed on the chart. The medical consultant has instructed Tharindu to add the grain kurakkan to his diet.
Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
Tharindu is 167 cm tall and his weight has decreased to 76 kg.
He also receives a food parcel with more grains and a packet of fat-free milk powder. For his food parcel, we also reduced the quantity of red rice and had added soy protein, as well as kurakkan, as instructed by Dr. Arosha.

FEBRUARY 2019

Tharindu will continue to visit the clinic at Karapitiya Teaching Hospital every 6 months with a new blood profile. His cholesterol level was low, and no change in the dosage of his medication was needed.
Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has decreased by several kilograms. The medical consultant had given Tharindu a diet system, and he must eat what is listed on the chart. The medical consultant has instructed Tharindu to add the grain kurakkan to his diet.
Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
Tharindu is 167 cm tall and weighs 76 kg.
He also receives a food parcel with more grains and a packet of fat-free milk powder. For his food parcel, we also reduced the quantity of red rice and had added soy protein, as well as kurakkan, as instructed by Dr. Arosha.

MARCH 2019

Tharindu will continue to visit the clinic at Karapitiya Teaching Hospital every 6 months with a new blood profile. His cholesterol level was low, and no change in the dosage of his medication was needed.
Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has decreased by several kilograms. The medical consultant had given Tharindu a diet system, and he must eat what is listed on the chart. The medical consultant has instructed Tharindu to add the grain kurakkan to his diet.
Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
Tharindu is 167 cm tall and weighs 76 kg.
He also receives a food parcel with more grains and a packet of fat-free milk powder. For his food parcel, we also reduced the quantity of red rice and had added soy protein, as well as kurakkan, as instructed by Dr. Arosha.

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