Sri Lanka: Long Term Medical Support and Growth Hormone Treatment for Children

Updates for 4 Patients in Program: Q2 2018

September 10, 2018

Stephney Minerva Fernando

Sri Lanka Initiative Reports

Madumekala with her food parcel

Madumekala Ubeywarna

APRIL 2018

Madumekala is a 24-year-old young woman. She did not attend the April meeting, but her mother, Mrs. Rohoni, did come. Madumekala did not receive 5 vials of growth hormone (GH) for the month of April.
Madumekala is continuing sex hormone medication: estrogen, 1 tablet daily. The traveling fee to Colombo to purchase the medication was Rs. 1,000/=.
Dr. Muditha Weerakkody, a consultant endocrinologist, prescribed Progynova as Madumekala’s new medication for menstruation instead of Climen. Madumekala had been on this new medication for three months with no complaints. The dosage is 1 tablet every day. Her weight and height have increased.
Madumekala’s bone age is 13.5 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He again referred Madumekala to Professor Sujeewa for further observation as the medical consultants believe she should stop the growth hormone therapy.
Madumekala now has to visit the Karapitiya Teaching Hospital in Galle once a month. She visited the Karapitiya Clinic in April.
Madumekala’s sodium valproate dosage has stopped, but other medications continue.
Madumekala’s food parcel was changed slightly; instead of red rice, she is given more milk powder, salmon, and cheese. This change makes the food parcel easier for her to take to Galle.

MAY 2018

Madumekala is a 24-year-old young woman. She did not attend the May meeting, but her mother, Mrs. Rohoni, did come. She did not receive 5 vials of growth hormone (GH) for the month of May.
Madumekala is continuing sex hormone medication: estrogen, 1 tablet daily. The traveling fee to Colombo to purchase the medication was Rs. 1,000/=.
Dr. Muditha Weerakkody, a consultant endocrinologist, prescribed Progynova as Madumekala’s new medication for menstruation instead of Climen. Madumekala has been on this new medication for three months with no complaints. The dosage is 1 tablet every day. Her weight and height have increased.
Madumekala’s bone age is 13.5 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He again referred Madumekala to Professor Sujeewa for further observation as the medical consultants believe she should stop the growth hormone therapy.
Madumekala now has to visit the Karapitiya Teaching Hospital in Galle once a month. She visited the Karapitiya Clinic in May.
Madumekala’s sodium valproate dosage has stopped, but other medications continue.
Madumekala’s food parcel was changed slightly; instead of red rice, she is given more milk powder, salmon, and cheese. This change makes the food parcel easier for her to take to Galle.

JUNE 2018

Madumekala is a 24-year-old young woman. She did not come to the meeting with her mother, Mrs. Rohoni. She did not receive 5 vials of growth hormone (GH) for the month of June.
Madumekala is continuing sex hormone medication: estrogen, 1 tablet daily. The traveling fee to Colombo to purchase the medication was Rs. 1,000/=.
Dr. Muditha Weerakkody, a consultant endocrinologist, prescribed Progynova as Madumekala’s new medication for menstruation instead of Climen. Madumekala has been on this new medication for three months with no complaints. The dosage is 1 tablet every day. Her weight and height have increased.
Madumekala’s bone age is 13.5 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He again referred Madumekala to Professor Sujeewa for further observation as the medical consultants believe she should stop the growth hormone therapy.
Madumekala now has to visit the Karapitiya Teaching Hospital in Galle once a month. She did not visit Karapitiya Clinic in June due to sickness.
Madumekala’s sodium valproate dosage has stopped, but other medications continue.
Madumekala’s food parcel was changed slightly; instead of red rice, she is given more milk powder, salmon, and cheese. This change makes the food parcel easier for her to take to Galle.

Madura’s mother with the food parcel

Madura Madushanka

APRIL 2018

Madura received 4 vials of growth hormone (GH) for the month of April. He takes 14 clicks per day.
He had attended school and private classes and has completed the Advanced Level Exam twice. At the moment, he is taking an advanced computer course, and he looks forward to obtaining suitable employment.
As Professor Sujeewa requested, Madura is now attending the clinic for his kidneys and taking medication as well.
His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.

MAY 2018

Madura received 4 vials of growth hormone (GH) for the month of May. He takes 14 clicks per day.
He had attended school and private classes and has completed the Advanced Level Exam twice. At the moment, he is taking an advanced computer course, and he looks forward to obtaining suitable employment.
As Professor Sujeewa requested, Madura is now attending the clinic for his kidneys and taking medication as well.
His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.

JUNE 2018

Madura received 4 vials of growth hormone (GH) for the month of June. He takes 14 clicks per day.
He had attended school and private classes and has completed the Advanced Level Exam twice. At the moment, he is taking an advanced computer course, and he looks forward to obtaining suitable employment.
As Professor Sujeewa requested, Madura is now attending the clinic for his kidneys and taking medication as well.
His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.

Gayan with his food parcel

Gayan Madushanka

APRIL 2018

For the month of April, Gayan did not receive any vials of growth hormone (GH). Gayan is 22 years old. After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him in February 2016.
Gayan’s Testoviron injection started at 50 ml in April 2014; it increased to 125 ml in August 2016; it again increased to 250 ml in October 2017. Gayan visited the clinic at Karapitiya on April 5^th to get the Testoviron injection.
Gayan was treated by Dr. Muditha Weerakkody, a consultant endocrinologist, who increased Gayan’s injection as well as thyroxine dosage from 100 to 150 mg per day. Other medication is continuing as well.
Gayan has to visit the clinic at Karapitiya after 3 months, but he has to receive the Testoviron injection every month.
Gayan had an MRI scan done in January, and will have to undergo another one after 6 months.
Gayan has no complaints and takes his medication as usual (150 mg thyroxine daily and hydrocortisone, 1 tablet in the morning and ½ tablet in the afternoon and evening). The Karapitiya Clinic in Galle dispenses the medication to Gayan freely.
Gayan is currently working at a tailoring shop as a helper.

MAY 2018

For the month of May, Gayan did not receive any vials of growth hormone (GH). Gayan is 23 years old. After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him in February 2016.
Gayan’s Testoviron injection started at 50 ml in April 2014; it increased to 125 ml in August 2016; it again increased to 250 ml in October 2017. Gayan visited the clinic at Karapitiya on May 3^rd to get the Testoviron injection.
Gayan was treated by Dr. Muditha Weerakkody, a consultant endocrinologist, who increased Gayan’s injection as well as thyroxine dosage from 100 to 150 mg per day. Other medication is continuing as well.
Gayan has to visit the clinic at Karapitiya after 3 months, but he has to receive the Testoviron injection every month.
Gayan is currently working at a tailoring shop as a helper.

JUNE 2018

For the month of June, Gayan did not receive any vials of growth hormone (GH). After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him in February 2016.
Gayan’s Testoviron injection started at 50 ml in April 2014; it increased to 125 ml in August 2016; it again increased to 250 ml in October 2017. Gayan visited the clinic at Karapitiya in June to get the Testoviron injection.
Gayan was treated by Dr. Muditha Weerakkody, a consultant endocrinologist, who increased Gayan’s injection as well as thyroxine dosage from 100 to 150 mg per day. Other medication is continuing as well.
Gayan has to visit the clinic at Karapitiya after 3 months, but he has to receive the Testoviron injection every month.
Gayan is currently working at a tailoring shop as a helper.

Tharindu’s wife signs the paperwork

Tharindu Hasanga

APRIL 2018

Tharindu visited the Karapitiya Teaching Hospital in Galle in April with his new blood profile.
Tharindu’s cholesterol level was good, but his LDL cholesterol level was high. There was no change in his medication.
Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has decreased by several kilograms. The medical consultant had given Tharindu a diet system, and he must eat what is listed on the chart. The medical consultant has instructed Tharindu to add the kurakkan grain to his diet.
The last time Tharindu and his wife visited the clinic, the medical consultants advised Tharindu to purchase an exercise machine to use daily in order to prolong his life. This brought Tharindu’s wife to tears as she cannot afford the cost of an exercise machine.
Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
Tharindu is 165.5 cm tall and weighs 79.5 kg.
He also receives a food parcel with more grains and a packet of fat-free milk powder. For his food parcel, we also reduced the quantity of red rice and had added soy protein, as well as the kurakkan grain, as instructed by Dr. Arosha.

MAY 2018

Tharindu visited the Karapitiya Teaching Hospital in Galle in May with his new blood profile.
Tharindu’s cholesterol level was good, but his LDL cholesterol level was high. There was no change in his medication.
Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has decreased by several kilograms. The medical consultant had given Tharindu a diet system, and he must eat what is listed on the chart. The medical consultant has instructed Tharindu to add the kurakkan grain to his diet.
The last time Tharindu and his wife visited the clinic, the medical consultants advised Tharindu to purchase an exercise machine to use daily in order to prolong his life. This brought Tharindu’s wife to tears as she cannot afford the cost of an exercise machine.
Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
Tharindu is 167 cm tall and weighs 85 kg.
He also receives a food parcel with more grains and a packet of fat-free milk powder. For his food parcel, we also reduced the quantity of red rice and had added soy protein, as well as the kurakkan grain, as instructed by Dr. Arosha.

JUNE 2018

Tharindu visited the Karapitiya Teaching Hospital in Galle in June with his new blood profile.
Tharindu’s cholesterol level was fair, and his LDL cholesterol level was high. There was no change in his medication.
Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has decreased by several kilograms. The medical consultant had given Tharindu a diet system, and he must eat what is listed on the chart. The medical consultant has instructed Tharindu to add the kurakkan grain to his diet.
The last time Tharindu and his wife visited the clinic, the medical consultants advised Tharindu to purchase an exercise machine to use daily in order to prolong his life. This brought Tharindu’s wife to tears as she cannot afford the cost of an exercise machine.
Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
Tharindu is 167 cm tall and weighs 85 kg.
He also receives a food parcel with more grains and a packet of fat-free milk powder. For his food parcel, we also reduced the quantity of red rice and had added soy protein, as well as the kurakkan grain, as instructed by Dr. Arosha.