Sri Lanka: Long Term Medical Support and Growth Hormone Treatment for Children

Project Goal:
Provide long-term medical support and treatment to children suffering from congenital health conditions affecting Growth Hormone production and cholesterol modulation.                         

Project Objectives:
To coordinate and manage the system which delivers treatment to the children, provides medical consultations and ensures patient compliance to treatment protocols to optimize the children’s chances for growth and maximum health benefits

Summary of RMF-sponsored activities carried out during the reporting period under each project objective:

• Organized and held 3 monthly meetings for the months of October, November and December.
• Information was collected from the children about their treatment & progress at the monthly meetings.
• Traveling expenses and nutritious food packages were also provided for the children and their families.
• The food parcels worth Rs.2,199/= each were handed over to the 5 children by Nishantha Sandakelum & Minerva Fernando.

MADUMEKALA

October

• She is 20 years old and had come to the meeting with her Mother. Had obtained the 4 vials of Growth Hormone for the month. Madumekala is continuing sex hormone medication, Climen 1 tablet daily.
• As Prof. Sujeewa had instructed the Growth Hormone therapy was increased again from 12 clicks to 14 clicks. Project Coordinator Minerva administers the injection as there were some problems of travelling late in the evening.
• From the 11^th of Sep.2012 her dosage was 10 clicks & this was successful & she had gained in height.
• In the month of March 2014, Prof. Sujeewa had again increased the dosage of Growth Hormone, 10 clicks to 12 clicks & and there was another increase 14 in July, but there was no change in the height for this time duration.   

November

• She had her birthday and turned 21 years and had come to the meeting with her Mother. She obtained the 4 vials of Growth Hormone for November 2014. Madumekala is continuing sex hormone medication, Climen 1 tablet daily.
• As Prof. Sujeewa had instructed the Growth Hormone therapy had been increased from 12 clicks to 14 clicks.
• Her Auto Click Machine was out of order starting on the 15^th of November and she had gone to the Clinic at Karapitiya to check her weight but there was no progress.
• We informed the Baurs Company and the Project Manager, Mr. Noel instructed to bring the machine to Colombo to repair it.

December

• Madumekala came to the monthly meeting with her Mother. Had obtained 4 vials of Growth Hormone for the December 2014. Madumekala is continuing sex hormone medication, Climen 1 tablet daily.
• As Prof. Sujeewa had instructed the Growth Hormone therapy is now 14 clicks per application. We plan to meet Prof. Sujeewa to get his decision about Madumekala, continuing the therapy as there was no progress in height in the last few months.
• Her Auto Click Machine was out of order and it was replaced with a new Machine from the Baurs Company.  She had gone to the Clinic at Karapitiya to check her weight but there was no progress.  

 FAZEER AHAMED

October

• Fazeer did not attend the 10^th monthly meeting of year 2014. He had not obtained the 4 vials of Growth Hormone therapy for October.        
• His dosage is 10 clicks daily at night. For the October Fazeer had obtained the Food Parcel.
• Fazeer is now in Grade 12 at Wayamba Royal College at Kurunegala and he is boarded there to continue his studies. Economics, Information Technology & Accounting are his subjects for his Advanced Level & he will be sitting for the examination in the year 2016.

November

• Fazeer had  not attended the 11^th monthly meeting of 2014 but his aunt had come with all the information as Fazeer was attending his Year End Examination.  He obtained the 4 vials of Growth Hormone therapy for November. His dosage is 10 clicks daily at night. Fazeer also obtained the Food Parcel.

December

• Fazeer attended the 12^th monthly meeting of 2014. He obtained 1 vial of Growth Hormone therapy for December.        

MADURA MADUSHANKA
October

• Madura obtained 4 vials of Growth Hormone for the 10^th month of 2014. He had not gained in height for this time duration.
• Madura had not come for the meeting. Madura has to attend Private Classes and he could not attend the meeting as scheduled.
• Madura had undergone an operation of his knee cap which was damaged due to an accident. The operation was done on the 06^th of October 2014 at Matara Base Hospital by Dr. Jayasekara, the Senior Surgeon of the Hospital. The operation was successful. 

November

• Madura obtained 4 vials of Growth Hormone for the 11^th month of 2014. 

December

• Madura had obtained 4 vials of Growth Hormone for the 12^th month of the year 2014. 

GAYAN MADUSHANKA

October

• In October 2014 the parents had obtained 4 vials of Growth Hormone & Gayan had visited the Clinic at Karapitiya to check his progress.
• The dosage of Growth Hormone Therapy is 10 clicks each night. The injection of Testoviron was given on the 11^th of October 2014.
• Gayan attends school in Hambantota District at Ambalantota.

November

• In November 2014 the parents had obtained 2 vials of Growth Hormone & Gayan had visited the Clinic at Karapitiya to check his progress.
• The dosage of Growth Hormone Therapy is 10 clicks each night. The injection of Testoviron was given on the 11^th of November 2014.

December

• In December 2014 the parents had obtained 2 vials of Growth Hormone & Gayan had visited the Clinic at Karapitiya to check his progress.
• The dosage of Growth Hormone Therapy is 10 clicks each night.
• The injection of Testoviron was given on the 9^th of December 2014.

THARINDU

October

• The increased medication continued. Tharindu had visited Karapitiya Clinic with his new Blood Profile on the 30^th of October, and the Senior Medical Consultant, Dr. Arosha instructed Tharindu to do more exercises to decrease his weight. After one month Tharindu has to get another blood profile at the Clinic.  
• Prof. Sujeewa Amarasinghe, the Senior Pediatrician of Karapitiya Teaching Hospital in Galle, SriLanka had referred Tharindu to Dr. Arosha. He has to take Rosuvastatin 40mg & Ezetimibe 10mg every night. He also gets a Food Parcel with more grains and a packet of fat free milk powder.

November

• The increased medication continued.
• Prof. Sujeewa Amarasinghe, the Senior Pediatrician of Karapitiya Teaching Hospital in Galle, SriLanka had referred Tharindu to Dr. Arosha. He has to take Rosuvastatin 40mg & Ezetimibe 10mg every night. He also gets a Food Parcel with more grains and a packet of fat free milk powder.
• Tharindu could not attend the meeting but his wife had come with all the information.

December

• The increased medication continued.
• Prof. Sujeewa Amarasinghe, the Senior Pediatrician of Karapitiya Teaching Hospital in Galle, SriLanka had referred Tharindu to Dr. Arosha. He has to take Rosuvastatin 40mg & Ezetimibe 10mg every night. He also gets a Food Parcel with more grains and a packet of fat free milk powder.