Sri Lanka: Long Term Medical Support and Growth Hormone Treatment for Children
Long-Term Medical Support for Children, Q2 2015
August 04, 2015
Stephney Minerva Fernando
Summary of Activities
- Organized and held 3 monthly meetings for the months of April, May, and June 2015
- Collected information from the children about their treatment and progress at the monthly meetings
- Provided travel expenses and nutritious food packages for the children and their families
- Gave each of the 5 children a food parcel, worth Rs. 2,199/= each. The food parcels were distributed by Mr. Nishantha Sandakelum and Mrs. Stephney Minerva Fernando for the months of April, May, and June 2015.
Project Goal
Provide long-term medical support and treatment to children suffering from congenital health conditions affecting growth hormone production and cholesterol modulation.
Full Report
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Results &
ACCOMPLISHMENTS
Professional Support
Services Provided
- Issuing medication,
- Safely storing the delivered vials of growth hormone (GH) from Baurs Company,
- Documenting the issued vials and recording the progress of the children’s height and weight by the medical authority at Karapitiya Teaching Hospital in Galle, Sri Lanka, under the supervision of Professor Sujeewa, Senior Consultant Pediatrician of Karapitiya Teaching Hospital.
Next Steps
Ongoing Care
Plans for the next reporting period include: Continue long-term medical support for these 5 children through monthly meetings, therapy, provision of food parcels, and any additionally required monitoring or treatment during the third quarter of 2015, which includes the months of July, August, and September.
Success Stories
5 Patients Continually Receive Care
Madumekala Ubeywarna
Fazeer Ahamed
Madura Madushanka
Gayan Madushanka
Tharindu Hasanga
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Photos
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Numbers
Served
- 4 children receiving growth hormone therapy
- 1 child receiving treatment for hyperlipidemia
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Success
Stories
Madumekala Ubeywarna
April-June 2015
- Madumekala is a 21-year-old young woman. She came to the meeting with her mother. She received 4 vials of growth hormone (GH) for the months of April, May, and June.
- Madumekala is continuing sex hormone medication: Climen, 1 tablet daily.
- As Professor Sujeewa had instructed, Madumekala’s growth hormone therapy was increased again from 12 clicks to 14 clicks. We plan to meet with Professor Sujeewa to get his decision about Madumekala continuing therapy, as there was no progress in her height during the last few months.
- In June, Madumekala was admitted to the Tangalle Base Hospital on June 12th with a lower respiratory tract infection. She had a fever and cough, and epigastric pain and nausea too. The hospital authority gave their consent to continue Madumekala’s growth hormone therapy at the hospital. She was discharged on June 15th.
Fazeer Ahamed
April-June 2015
- He received 4 vials of growth hormone (GH) therapy for the months of April, May, and June.
- Fazeer’s dosage is 10 clicks at night, daily. For the months of April through June, Fazeer was given the food parcel.
- Fazeer is now in grade 13, and he attends Wayamba Royal College in Kurunegala, where he lives while continuing his studies. Economics, information technology, and accounting are the subjects he is studying in the Advanced Level, and he will be sitting for the examination in the year 2016.
- For the convenience of his studies, Mr. Nishantha Sandakelum and Mrs. Stephney Minerva Fernando decided to allow Fazeer’s mother to attend the monthly meetings with all of Fazeer’s information.
Madura Madushanka
April-June 2015
- Madura received 4 vials of growth hormone (GH) for the months of April through June. He did not check his height during this time period.
- Madura has started to attend school and private classes. His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.
Gayan Madushanka
April-June 2015
- For the months of April through June, Gayan’s parents received 4 vials of growth hormone (GH) for him, and Gayan visited the clinic at Karapitiya to check his progress.
- Gayan’s dosage of growth hormone therapy is 10 clicks each night. An injection of Testoviron was administered each month. No complaints, and his bone age is 15 years.
- Gayan had started to attend school again, and he is very happy about the school. Gayan is a developmentally delayed child, and this school provides education for such children.
Tharindu Hasanga
April-June 2015
- Tharindu’s increased medication had to continue. He will need to visit the Karapitiya clinic with his new blood profile after 6 months. Senior Medical Consultant, Dr. Arosha, had instructed Tharindu to do more exercises to decrease his weight. Tharindu’s weight is 75 kilos.
- Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha. Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night.
- He also receives a food parcel with more grains and a packet of fat-free milk powder. Tharindu could not attend the monthly meeting in May, as he had hurt his ankle and could not walk. His wife informed us of his injury, and she came to the meeting with all his information.
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