Sri Lanka: Long Term Medical Support and Growth Hormone Treatment for Children
Long-Term Care Continues: Q1 2016
March 31, 2016
Stephney Minerva Fernando
Summary of Activities
- Organized and held 3 monthly meetings for the months of January, February, and March 2016
- Collected information from the children about their treatment and progress at the monthly meetings
- Provided traveling expenses and nutritious food packages for the children and their families
- Gave each of the 5 children a food parcel, worth Rs. 2,199/= each. The food parcels were distributed by Mr. Nishantha Sandakelum and Mrs. Stephney Minerva Fernando for the months of January, February, and March 2016.
Provide long-term medical support and treatment to children suffering from congenital health conditions affecting growth hormone production and cholesterol modulation.
Access to Quality Care
Medical Services Provided
- Issuing medication
- Safely storing the delivered vials of growth hormone (GH) from Baurs Company
- Documenting the issued vials and recording the progress of the children’s height and weight by the medical authority at Karapitiya Teaching Hospital in Galle, Sri Lanka, under the Supervision of Professor Sujeewa, Senior Consultant Pediatrician of Karapitiya Teaching Hospital.
Continuity of Care
We plan to continue long-term medical support for these 5 children through monthly meetings, therapy, provision of food parcels, and any additionally required monitoring or treatment during the second quarter of 2016, which includes the months of April, May, and June.
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- Madumekala is a 22-year-old young woman. She came to the meetings with her mother. She received 5 vials of growth hormone (GH) for the months of January, February, and March.
- Madumekala is continuing sex hormone medication: Climen, 1 tablet daily. Her bone age is 11 years. It is below her chronological age. Madumekala was treated by Dr. Manilka Sumanthilaka, a consultant endocrinologist. He again referred Madumekala to Professor Sujeewa for further treatment.
- As Professor Sujeewa instructed, Madumekala’s growth hormone therapy was increased again from 12 clicks to 14 clicks from January 14th, 2016. She also needs 5 vials of growth hormone (GH) for each month (increased from 4 vials).
- Fazeer did not attend the monthly meetings in January, Februrary, or March, and we received no information from him. He did not receive his 4 vials of growth hormone therapy for the months of January, February, or March.
- We did not purchase Fazeer’s 4 vials of growth hormone for the months of January, February, or March 2016, and we instructed the medical authority of Ward No.1 not to issue the vials, as Fazeer must meet with us in Tangalle before going to the clinic in Karapitiya.
- Fazeer’s dosage is 10 clicks at night, daily. Since he did not attend the monthly meeting, Fazeer was not provided with a food parcel for the months of January, February, or March.
- Madura received 4 vials of growth hormone for the months of January, February, and March. He did not check his height during this time period.
- He had attended school and private classes, and completed the Advanced Level Exam. At the moment, he is taking a computer course too.
- His mother is very much concerned with his progress, and the medical authorities at Karapitiya Teaching Hospital are very satisfied with her.
- For the month of January, Gayan’s parents received 2 vials of growth hormone (GH) for him, and Gayan visited the clinic at Karapitiya once to check his progress.
- For the months of February and March, Gayan did not receive any vials of growth hormone (GH). After observing the progress of Gayan’s height, Professor Sujeewa had instructed to stop therapy for him. Gayan visited the clinic at Karapitiya once to get the Testoviron injection.
- Gayan had stopped attending school. He is hoping to find a job. Gayan’s mother had returned the auto click machine and the remaining needles.
- Tharindu’s increased medication had to continue. He will need to visit the Karapitiya clinic with his new blood profile in February 2016. No change in his medication.
- No change in his medication. Senior medical consultant, Dr. Arosha, had instructed Tharindu to do more exercises, such as cycling, to decrease his weight. Tharindu’s weight has increased. The medical consultant gave Tharindu a diet system, and he must eat what is listed on the chart.
- Professor Sujeewa Amarasinghe, the senior pediatrician at Karapitiya Teaching Hospital in Galle, Sri Lanka, had referred Tharindu to Dr. Arosha.
In April, Tharindu will need to visit the clinic with a new blood profile. His weight is 84.3 kg, and his height is 165 cm.
- Tharindu takes Rosuvastatin (40 mg) and Ezetimibe (10 mg) each night. He also receives a food parcel with more grains and a packet of fat-free milk powder.